Monday, 6 p.m.
The feeding tube was placed yesterday and Alison, as always was so strong. Unfortunately, after being placed, the tube needed to be "advanced" further, which was pretty uncomfortable and overwhelming for her. As much as we did not want the feeding tube for her, we are somewhat relieved to know that she is beginning to receive adequate nutrition. It was really so stressful for her to try and eat enough to meet her nutritional requirements as she is nauseous quite often.
Alison's creatinine (kidney function) level went up to 4.5 and a test she went for today indicated that she has acute tubular necrosis (ATN). This means that the recovery of her kidneys this time may take longer-ugh!!! The doctors are watching her very, very closely. They do expect that her kidneys will recover, we are just hoping that her body can endure while recovering and that we will not have to consider temporary dialysis. Please pray that her kidneys will recover soon.
Alison's friend Laura stopped by with her mom after a doctor's appt. at Yale. Aunt Terri also came to visit. Alison was able to enjoy their company, which was nice to see. Mom also had friends come to visit today-it was wonderful to see them and catch up a bit.
John and his mom were at Yale today for a follow up visit. We were hoping to connect but as luck would have it, Alison needed to go for an ultrasound. We will call them later to see how everything went today.
Well, here's to hoping and praying for strong kidneys.
Love to all,
Karen and Joe
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Sometimes in times of crisis we forget what we are thankful for. I am thankful for the powerhouse that Alison is to get through this incredibly trying time. I am thankful that Joe and Karen are her parents for they are true advocates for their children's well being.I am thankful for Jen and Stephen who have supported their sister throughout their lives. I am thankful for John for his incredibly unselfish gift of life. I am thankful for the doctors and nurses for their continued persistence to make it better for Alison. But most of all I am thankful for the Cubbellotti family who have been willing to share this experience with us even in the most difficult circumstances. I am eternally thankful to call them my friends for through their example has made my life richer and me a better person.
ReplyDeleteSo the prayers keep coming with abundance your way and sending lots and lots of hugs
Barb
My prayers are with you. Nothing more to say, Barb you said it all. Thank-you and hoping for good nights rest.
ReplyDeleteLove to all,
Sandi