Sorry it's taken a while to update. Alison's liver biopsy revealed that she had cholestasis, which is pretty nonspecific and could have been minor to quite serious. Thank God, it appears to be minor. We firmly believe that this was caused by the crohn's medication that Alison's gastroenterologist insisted she start taking again. It was after her first injection since the transplant, that we saw the ill effects. Needless to say, she will not take this medication again. It appears that the medication has not had long term effects, as Alison's liver enzymes have now come down to almost normal-she got this news yesterday, along with the news that her pleural effusions are gone. We are so very relieved-Alison is so happy. Alison does now have a cold-we were pretty concerned as we did not know how her body would be able to fight this. So far, she seems to be doing well and we found an over the counter cold medication that is safe for her to take and seems to be helping.
Alison's big focus these days is classes and appears to be "itching" to get back to activities. It's been pretty challenging to be so restricted-she has not been able to go to malls, restaurants or any activities that involved numbers of people-a tough order with college and sorority activities everywhere. Hopefully, once the flu season is over, the restrictions will lighten a bit. Another focus, of course, is the ALI'S ANGELS BENEFIT CONCERT. If you have not done so already, please purchase your tickets ASAP. It is sure to be a wonderful evening to honor Alison and John--and raise money to benefit families of individuals facing a liver transplant and donor families. We have already learned of a young family with a 3 month old who is facing a transplant and can use our help-please support this important fundraiser.
Hope all is well with everyone out there.
Joe and Karen