So, its official...the transplant is April 7th. It is finally becoming real. After 10 family members and friends were determined ineligible, the doctors went back to Stephen, My amazing, selfless brother is giving me the gift the keeps on living. He is my second chance at life and I am so appreciative for him and everyone that has gotten tested for me. I don't know what I would do without my family and friends.
Here is some information about the surgery and things happening before and after it. There are a lot of things that are opposite before, during, and after surgery for Stephen and me. Hopefully these things are helpful...
1. I will be admitted on Monday, April 6th for testing and prep before surgery
2. Stephen has to go in for testing on Monday, but won't be admitted until Tuesday morning.
3. Stephen's surgery will start at about 7am on Tuesday morning.
4. A few hours after his surgery, around 9 or 10, they will take me in to start my surgery.
5. Stephen's surgery should last about 6 hours
6. My surgery should last about 10 hours
7. The doctor and members of the transplant team will come out to update anyone who is in the waiting room during the surgery.
8. After surgery, I will be kept unconscious with a breathing tube until at least Thursday, possibly longer.
9. Stephen will be woken up soon after surgery.
10. I will be in the ICU for 2-4 days.
11. Stephen will be in the ICU for 2 days.
12. I will be in pediatrics, Stephen will be in adult.
13. I am not allowed to have visitors until 10 days after surgery. My parents and Jen can see me if they wear gowns, masks, and gloves when they come in.
14. Soon after surgery, they will want both Stephen and me to get up and walk around. We will be going through some physical therapy in the hospital that helps us do simple tasks to make living at home easier.
15. Stephen will be in the hospital for 5-7 days total.
16. I will be in the hospital for probably 14 days.
17. Stephen will be living home for a month, and then gets to go back to living in NY!
18. My recovery will be about 3 months and I shouldn't be in big groups of people for a very long time.
19. Both Stephen and I will have to go back to the hospital a couple times a week at the beginning to check how we are doing after we are discharged from the hospital.
We got a lot of information tonight at the meeting we had with the transplant team. They were very reassuring and helpful that they would do everything in their power to keep us safe and make sure things go as well as possible. Please keep myself, Stephen, Jen and my parents in your prayers during this undertaking.
I love you all so much and thank you for all your support.
Make sure to comment back on this page so others can read it and I can too! When I am feeling better, I can respond. In the meantime, my mom and Jen might be posting things to keep everyone updated. This is definitely a much easier way to inform everyone of what is going on so my mom doesn't lose her voice explaining the story a bunch of times (though maybe we should have her do that...hahaha!) JUST KIDDING!
Check in daily for updates! <3