GREAT NEWS!!!!! I AM GOING HOME TOMORROW!! It's amazing that I get to go home, but this is no easy feat. I am going home with an NG tube that goes up my nose and down my throat which is giving me all my nutrients for the next 2 weeks, at least. I also have to get albumin infusions weekly and blood thinner injections daily. So as awesome as it feels to go home, there is a lot that I'm going to have to deal with; which is going to stink. Please pray that this stupid tube can come out of my nose in fewer than two weeks as I am already hating it. It is extremely uncomfortable and somewhat painful. The doctors say I will get used to it; let's hope that happens like...tomorrow. The purpose of this tube and the specific stuff going through it is that it bypasses my lymph system. By doing this, my lymph system will close off like it should've done on it's own. If/when it does this, the fluid that is coming from my incision should turn clear and eventually slow and hopefully stop all together. I still may need to get a few stitches to close up the open part of the incision, but we will only know once this treatment starts to work. I really hope that the next 2 weeks goes by extremely fast, because this isn't going to be easy for me. No eating for 2 whole weeks is going to stink for this Italian girl. I LOVE my food and desperately want to eat. But, if doing this treatment is going to fix the problem, then I need to do it.
As much as these next 2 weeks will be hard, I have to try to remember how good I am feeling overall. I am no longer in constant pain, my joints don't hurt anymore, I am not nauseous all the time, I am regaining my energy-all a result of my new liver from one very special person-John.
Please keep John in your prayers as he is still in the hospital. It is so difficult for me to be so happy about going home, knowing he will still be here. I went to visit him tonight, and his spirits are great, as usual. He is currently drinking contrast and going for a test later on tonight to make sure that he is healing appropriately. I am eager to hear the news from his test; if they come out well, he can eat tomorrow!! This is something he is really looking forward to; he said he is craving cinnamon toast. Let's hope that John can have his toast; he really deserves it. I really hope that he gets to go home very, very soon and head back to school. He has been through sooooo much, it breaks my heart to think of all the pain and suffering he has been through for me-there are no words to tell him how I feel.
Thank you once again for keeping John and me and our families in your thoughts and prayers. We got through these past 2 1/2 weeks with the support from the ones we love.
That is all for now; good bye 7 west, room 722...I WON'T be missing you...
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Congrats hun, it is a true accomplishment. Enjoy home! Can't wait to see you in a month :)
ReplyDeleteYEA!!!!!
ReplyDeleteDear Alison:
ReplyDeleteI am so happy for you. I know how much you want to go home. You are a very brave and determined young lady and this new treatment is on the way to your recovery. I hope John gets his toast today and you and Mom can enjoy some home time. I would be happy to sit with you any time when you get home. My prayers are with you and John and hope to see you when you get home and are ready for visitors (or helpers).
Love & Kisses
Aunt Terri
Dear Alison,
ReplyDeleteSo happy to hear you are going home. The ways things have been progressing that tube will be out in no time. Our prayes will continue for everyone for a quick recovery. I'll am here for all of you if help is needed.
WELCOME HOME ALISON
Love aunt Sandi and the family xxxo
Alison, Although Yale New Haven Hospital has been a a bitter sweet place for you, I find it has become a place with very special meaning to me. It's as if you and John are leaving the place where you both were reborn. I'll be taking my son home from the hospital for the second time in his life, both times with this special feeling of pride that is indescribeable. BUT... Also it's the place where I met this family in the most unusual way. A place where hope and love came together and became a miracle. Yale New Haven Hospital will always be very special to me as well as Dr. Emre and the whole transplant team. I believe now more than ever anything is possible when you think there are no possibilities. You and your family changed my family forever. Your Mom has opened up a part of John's heart that wasn't suppose to be opened until he himself became a parent. That is because her love for you was so stong he could feel it in her words. You keep up the good work and I can't wait to see you on the outside. Have a good sleep tonight in your own bed and sweet dreams.
ReplyDeleteLove Doreen